Week 10 - The Weight of the World
In “The Sick Person as Object”, I found myself relating to Isabelle and wanting to care for her. I’ve worked in hospitals and, for the first time, was able to see life in a hospital from the eyes of a patient, rather than the staff. It is sobering to think that Isabelle was so dreadfully accurate in her portrayal of most hospital staff. In our hurry to provide the appropriate medical attention, we fail to care for the actual person in the bed. How sad that she had to first dispense care to her own caregivers before she herself would receive the care that should have been naturally dispensed to Isabelle. I am glad that she was able to push forward and get the care that she needed, but where were the advocates? Why was she having to fight alone – without anyone to assist her? Even able-bodied people, when they enter the hospital, often have someone (family, friend, neighbor) who will come and support them in such a tough time. Her alone-ness was striking in a hospital full of people.
In “Solitude”, I was struck by Louise’s sense of burdening family and friends. Perhaps it was her years on the “other side of the bed”, if you will. As a social worker, she saw how other people carried the burdens of family members who needed aid and wanted to save her family from that stress. How sad that no one in her family was in touch with her needs enough to know how alone and needy she was. I was saddened to read of her time in the hospital with only a stranger interviewing her to speak with. Where was her family? Where was her neighbor?
Both stories highlight the impersonal nature of much of the care that is provided to both the aging and the disabled. This parallels closely with a major finding that we had in our research relating to the disconnect between people who are working for systemic change (governmental, legal, etc) and people who are caring for individuals (who often cannot provide much at all). We need to bring these two sides closer together in order to begin to make major changes in the lives of individuals. Part of our project will be to provide a simple plan that people can use to begin to affect change. Hopefully it was encourage people to make the small changes that are possible at first, in order to achieve the end result.
